Luke's eye apt

It's almost midnight and I am just now in bed. Completely exhausted from our long day. I'm not really sure how to describe Luke's doctors apt. I think I may be more confused, anxious, and I don't know what else about it. We had a nice relaxing  three hour drive there. Didn't have to stop at all. My sister lives in the same town so we were able to stop by and see her and her four girls and I got to see her newest little one for the first time. She was born just a little after Luke. Today was the first day I felt like Luke was definetely smiling at us. As soon as he saw his cousin milee he started smiling and my sister. After that he seemed to just smile all day everytime anyone would talk to him. I love his smile I will have to try to get a picture.  

 Apt: Luke ended up being seen by THREE different doctors today. They didn't seem to be able to get a good look because he wouldn't focus on them or any of the toys they kept showing him. At one point even though they did not say it they seemed to be a little frantic not sure if he was responding to light. They did dialate his eyes also today. He had to be held still to be looked at and he cried so hard :( makes my heart break. They eventually got everything looked at and came to the conclusion. He is still very young to be able to say anything or pinpoint a problem as of right now, all three doctors seemed out of their depth, they decided he has wondering nystagmus. His eyes do not dart fast back and forth like Kelleys do his more wonder slowly back and forth. His eye nerves and response to light does seem to look good (happy about that). One doctor said she is not very familiar and hasn't seen a lot of nystagmus cases so she wasn't sure (confused why we were sent to this office if they don't know anything about it). Two of the doctors said it could clear up meaning they would stop moving. The other doctor didn't come back in after she called in the other one who called in the other one. So here's the confusing part about the statement that his eyes could get better. If he does have nystagmus there is no cure it will not get better. Even Kelley who had a surgery 6 months ago to help with her eyes they can not be stopped from actually darting back and forth there is no surgery that can fix this at this time. Kelley was diagnosed at about 14 weeks with nystagmus. Luke is only 9 weeks so his eyes may progress worse like Kelleys. There is a small concern that he is not focusing and tracking like Kelley was but once again he is still right at the age to begin doing this so it is hard to tell if there is a major issue or not. Although the doctors were nice today and as thorough as they good be I feel like Kelleys eye doctor who sees her and did her surgery will have a better idea. She was not available to be seen today but she will be his doctor from here on out. She will see him in sept when she does a check up on Kelleys eyes. Until then if they decide they want to see him before then or run any more imaging tests or we notice any change then we will have to go back but if not we will not until the end of sept. Here are a few pictures of him today. A close up when his eyes were Dialated. 

The last hour of our drive home he was crying off and on so I ended up in the back with him to calm him down. We are all tired. 

Kelley had a great day with her grandparents. Her gramE took her to the zoo and they had a picnic lunch. We missed her today but she would have been so tired of riding in the car and we would have had to stop for her to go potty. Progress today she pooped twice in the potty with her grandparents! She only wears diaper at nap and bedtime and goes most days without accident in her panties but has yet to grasp the poop in potty. She has been getting closer everyday so excited she went twice today! Here are a few pictures of her day today. 

Thank you for your prayers and please continue to pray!